Lisa that is just devastating!!!! It sounds like there is something else going on if it is affecting so many parts of your body. A physician is sometimes better than a doctor as they are usually consulted when a doctor can't work out what the problem is. Whatever you do, keep copies of all your test results and if you are not getting answers, keep changing doctors and specialists. It is not surprising that you are not sleeping but if you don't sleep well it makes everything more difficult to cope with and really affects your energy levels. If you can, get something to help you sleep. Everything is easier to cope with when you are not exausted and sleep deprived. I went through chronic/ post viral fatigue and no one diagnosed it even though it was quite obvious that this is what I had suffered after a shocking virus. The medical world can be very narrow minded so finding a doctor who is willing to help find an answer is very important for a cure and for peace of mind when you are feeling so vulnerable. If you are desperate, phone around to get into an ENT earlier or drop in to yours and explain that you need to be assessed urgently. If your emergency department has an ENT, that may be faster. I hope you have a good friend to support you xxxxx
The most common treatment for sudden deafness, especially in cases where the cause is unknown, is corticosteroids. Steroids are used to treat many different disorders and usually work by reducing inflammation, decreasing swelling, and helping the body fight illness. Steroids are usually prescribed in pill form. In recent years, direct injection of steroids behind the eardrum into the middle ear (from here the steroids travel into the inner ear), called intratympanic corticosteroid therapy, has grown in popularity. In 2011, a clinical trial supported by the NIDCD showed that intratympanic steroids were no less effective than oral steroids , but were less comfortable overall for patients. They remain an option for people who can’t take oral steroids.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.